Don't judge a book by it's cover

Another case of family don't understand your struggle. They call you everyday or every other week to see how you are feeling than they say you sound better but their reality of it is they don't know how you are really feeling or they doknow and they just love saying you sound better.

This lupus group I've been interacting with say family will never undrstand what we go through. It just burns me up the pain every day.  Pain is not my friend without pain pills you might as well stick a fork in me because I would be done.

I'm so depress it takes a lot to just hold my  my head up and keep going.  I'm so tired today is a rest day but I'm so drowsy all day and night ever since my Rheumatalagist  increased my medicine called Gabapentin from 300×3 to 300×4 and I believe its raising my blood sugar too.


The only girl's that know my pain are my daughters they don't judge me by my voice
They can look at me and right off the bat
They would say mom  what's wrong you don't feel good are you hurting what hurts
They are more understanding to my pain.
Love thoughs girls to life.  

Support groups are very helpful

I found out some interesting things today.
You can have more than one autoimmune disease. In my case I've had lupus for 24 yrs but was diagnosed with sjogrens
disease about 4wks ago.  I was told its Mixed Collagen Vascular Disorder.
Collagen is a tough, fiber-like protein that makes up about a third of body protein. It is part the structure of tendons, bones and connective tissues.
Collagen Vascular disease occurs when problems with the immune system affect collagen.